The Haunting
Sleeping problems solved? After months and months and months of trying everything we could think to try, we FINALLY solved the sleeping issues we were having with LB. I mean maybe. Possibly. Knock on wood. Hopefully. I mean we were a week away from having an exorcist voodoo shaman witch-doctor rabbi dance around the house, and shake sticks, splash water, and chant curses to chase the "ghosts" out of LB's room. These pesky ghosts that keep waking him up, and encouraging him to aimlessly wander around the house. I mean it had come to that, we started spooking ourselves into considering that there were actual ghosts hanging out in his room at night and playing with him. This theory was largely born from the fact that late at night when I would stay up and write, I would hear shuffling around, and then quiet giggles would start that would eventually erupt into this...
I would sneak into his room and it would be like the needle scratching across the record and LB would sit up, look at me completely dead pan and stoic like, "Dude! What? I was having fun. Close the Fucking Door." and when i would leave the giggling would start right back up. Even louder. OH so now I'm the asshole? LB and his ghost buddies are in there making fun of me now?
It turns out that one of the problems we will be facing in our lives with LB is an ongoing sleep battle that can last a lifetime. His melatonin levels are reversed, and the older he gets the more prone he will be to tire and grow lethargic during the day, and at night he becomes more wired and alert. His melatonin secretes completely differently then ours do, so none of this behavior at night is his fault. It appeared as sleep walking at first. As the night wears on and he wakes up the first few times, he is still cloudy and groggy, so he would just quietly wander around and eventually he would come to be standing at the foot of our bed. A big creep factor on the nights when his allergies are acting up, it would feel like Darth Vader had crept into our room and was standing at the foot of the bed staring at us sleep, breathing heavy. A bizarre thing to wake to. The deeper we went into night, the more awake LB would become. By the time 3:30 or 4 rolled around he was full on giggles, and it would be a struggle to keep him in his bed laying still. If he would lay still long enough he would sleep another round till 5:30 or 6.
The whole thing is a pattern. We control his allergies and keep the house silent and he has a better chance at staying asleep longer. If something wakes him up, like trouble breathing, or the train, or house noise, he is up. Once he wakes a few times, that melatonin is not working and his clock is reversed and he feels like he needs to stay awake. So we have the hepa filter running constantly to keep the white noise drowning out the outside world as much as possible.
Everyone keeps telling me... WATCH OUT when the baby comes you are going to be SOOOOO sleep deprived. And I am like, let me tell you about LB. I handle all of the putting him back in bed since Cole is locked away in her pillow palace and I don't want her getting up anyway. For the most part it is low maintenance, just the mechanical walking him back to his bed, putting him in it and saying like a robot, "stay in bed, be still, you will fall asleep, I love you." We locked off half of our house, so he can't go into the kitchen, or get to any exit doors to the outside, he was contained to the hallway and would just walk the hall to our room back to his. He follows the rules. He never plays with his toys until morning (his morning) which is between 5:30 and 6. So it was just the constant interruptions of him standing in our room. breathing heavy. Like a creep. The more pregnant Cole gets the more he wants to get into bed with us. He knows what happens once the belly gets to a certain size and he is in full panic mode. He wants to be around Cole every second. He has even been forgoing morning TV to play with Cole before school. I ask him every morning, "'Wow Wow?' or Play with Mama?" and he goes running off into our room with a toy and climbs into bed to play. I am amazed at how aware he is and he has been so much happier and balanced now that he has made the choice to build in one on one Mama time. He figured out that if he skipped watching TV he would get to play with her.
So yes. I was going to write out the list of all the things we tried to get him to sleep, but in the end there was nothing we could do. We manage it with rules and boundaries. So we tried something new last week and it has been getting him to sleep more. We put a lock on his door, and now that his wander option is gone, he just gets bored and will go back to bed much sooner then before. I still hear him get up, but he gets back in his bed and lays down and will drift off from laying still. So we have all been sleeping better. He is still an early riser, but he has stopped the crying at night. Oh the crying... he would get upset and cry because he would walk into our room and want to get into bed with us. Some nights he would just stand there a few minutes and then go back and get into bed. Some nights he would wander off and go lay in the hallway and I would find him sleeping on the floor. Most nights he would try and climb into our bed, and as soon as we would say "go back to your room", or I would take him back and put him into his bed, the water works would start for 20 to 30 minutes. another charming move of his was to open and close his door over and over and over and over. So now that we took the option away, he just gets up, walks around his room a minute, and then goes back to bed. We taught him to knock on his door if he needs us, and so far he only knocks in the morning. I hear him get up, and he will play with his toys for twenty minutes or so, and then he will knock.
From everything that we are reading this is all supposed to get much harder, more frustrating, and more complicated as he gets older, and we are just going to deal with it when that hurdle arrives. For now we are going to ignore the horror stories. He seems happy with this new routine and his mood and emotional balance is riding high these days. Big smiles, belly laughs, and his attempts to talk and verbalize his wants are increasing so fast. He is trying to communicate everything. This is an awesome time for all of us and it feels like he knows that these last few weeks are precious and he is draining everything he can out of these final moments where he has his Mama to himself. Another source of his calm and connection is that Cole has been building time into her routine in the morning to do skin brushing and stretches with him before he has to get dressed for school. We noticed a huge difference in his mood when this started. He loves it. Who wouldn't?
I realize that there are new readers here, and so sometimes when I write about LB I get a lot of emails asking about what's wrong? and is he autistic? and seriously, we aren't trying to create any mystery, we just chose not to write about it until we ourselves have a full grasp of it, and that takes a lot of time, and a lot of Doctors visits, which is just about half way done at this point. You can read this entry HERE it clears some things up. We are taking in the full picture and honestly just enjoying LB in this phase of his life. He is about to be 5 and we are experiencing all of the joys of when a child first learns to talk. He said "broke" this morning (referring to a toy not about us :) and Cole and I both lit up, eyes wide and happy. This is a really awesome time for all of us and so yeah, we are not focusing on the what ifs right now.
All the Love in the Universe ~ Me





33 comments:
This might be something you've already tried, but what about a Cool Mist Humidifier or a white noise machine to filter out house noise and what not?
I put one in our nursery, and my daughter doesn't wake to little or sometime loud noises.
We have one in our bedroom as well, because of extremely heavy footed upstairs women.
My friend's daughter used to wake up around midnight and stay up until about 5 am (I think Jenny was 2 at the time). Joann would play with her during that time (which is just crazy!) and lose lots of sleep because she had 2 other kids and couldn't stay in bed in the morning! Finally, she put a gate up in her daughter's doorway and Jenny would just play quietly in her room.
OMG, that giggle is the most delightful thing I've heard all day!!
Best wishes for continued success with the nighttime issues!
Oh my. My little man is the champion night-walker. We tried everything, I put one of those "child proof" knob covers on the inside handle... opened it his first try. I put the child gate across the door, he launches himself over it. We lock it and he just gets pissed and throws every toy in his possession at the door until we open up... after a lot of sleepless nights and learning a lot more patience he sleeps most of the night in his room.
On another note, I loved reading the old post you linked to. You wrote it so beautifully and it's so obvious how blessed LB is. He's remarkable.
He sounds like such a good, happy little boy :) I love that your new routine is working for you and Cole... Maybe now you can squeeze in a *little* extra rest before the teensiest buddy or buddy-ess ;) comes along...
Speaking of which, and maybe I just missed you writing about this before if you already have... But do you know the sex? Do you want to? Are you hoping for one or the other? ...You don't have to answer that last one, I remember when I was pregnant I would feel guilty when I answered that one.
My daughter (now 4) just doesn't need as much sleep as everyone else in our house (she has 3 sleepy siblings) so I have a basket of night friendly toys next to her bed. The idea is she can play quietly or I'll take away the toys and she just has to sit in bed (and cry). She has stuffed animals and books. I hear her in there (not giggling so sweetly) bossing around her animals around 2 am every night. "Listen Mister, turn around and go back to your yard and bring me a treat!"
we do the noise machine in our kid's rooms as Kaci suggested. our house is small and that has helped. The melatonin issue I've never heard of before but sounds as if no matter what, your son has awesome parents. sleep debt is so hard, though. neither of my sons were/are good sleepers.
p.s. consider yourself tagged. at my place. scroll down - post before/or after depending how you look at it, the backfat one. yes, I said backfat.
It sounds like you guys are loving parents, I love the giggle, that made me smile this morning. I read the old post you linked to and I agree with you. It is not anyones business, and here is not the place to share these things. I want my kids to realize they were loved and mostly happy, there is no reason to bring them down. Your writing always amuses me and has yet to offend me.
When our son was born his room was upstairs. It was impossible for us to gate the staircase so we ended up gating his room with a swing-open stair gate. It basically turned his room into a play pen b/c his room was 100% safe/baby-proof and the door stayed open but gated. When he graduated to a big kid bed he could not get out of his room to wander around. We have since moved (he's on the ground floor now with no gate)and even now if he gets up (he's 5) before I do he just hangs out and plays in his room.
I mentioned in the post we have the Hepa Filter running and it makes a nice humming white noise. Adding humidity in the air would be bad for the boy, he needs the dry air. And yeah we put the door knob thingy on and he yanked it apart, one piece of tape around it and he has left it alone. He doesn't even try to open it any longer.
i did want to say that he doesn't have the same sleep patterns at his Dad's house and he always stays in his room. This is a new place so his boundaries are not as defined.
We are crossing our fingers he will be content with playing quietly and giggling with ghost friends.
I think he'll be fine.
People like to talk horror stories. Especially when it comes to the myriad of the world of autism and other things along that line.
My husband has Aspergers, and his doctor didn't believe him when we were first together. She didn't think (no one did actually) that he'd every be able to have a meaningful relationship.
I think she'd have a heart attack if she found out he got married. I guess my point is, is that kids can overcome a lot, and it sounds like your little guy is doing just that. Love and support go a long way.
OMG, that giggling made my uterus contract. I think I need babies now. Thanks for sharing, totally adorbs.
Glad you are finding a routine that works to get LB and yourself a bit more sleep at night :)
Awww that giggle is to die for! I think you guys are handling LB brilliantly - I've seen parents put an insane amount of pressure on kids to be something that they're not - and often when the child's behaviour is accepted as it is the child develops faster. Kudos to you and Cole!
I just have to say this, although I'm sure people have said it many a time already, but you are a fucking awesome husband and father. Seriously. I know the things you do for LB and Cole probably seem like second nature to you (I mean, why wouldn't you be helpful and accepting and so amazing with LB, duh) because you're a good guy, but you truly are pretty cool.
What you and Cole have done by allowing others to relate to your lives through your candid words is amazing. You are really helping others feel less alone.
Is that him? Is that LB?? Really infectious, that laugh.
I don't know if you've thought of this to help with the sleep issues, but have you tried using a...
Nah just kidding.
I love the way you fiercely love your family. It is beautiful to get a glimpse that protective, tenacious love in your posts about them. Thank you so much for sharing.
I love how you guys are such an insanely tight family working together to solve whatever may be thrown your way. That is the reason why LB and all of you will be just. fine. You got it all going on.
:-)
The audio was awesome. That is one happy ghost party going on in there....let me in!
sweetest giggle ever. congratulations on the achievement. reading your articles reminds me of 'marley and me' like you're jon grogan... haha.
That audio just gave me goosebumps. Nothing creeps me out than a child giggling during the night by his/herself...
Read this article. It might interest you...
http://www.cnn.com/2009/HEALTH/04/22/twitter.locked.in/index.html?eref=rss_topstories
Ok I can completely get with you on the creepy giggling thing. If I heard that one-sided laughing in the middle of the night over and over I might start cooking up some theories myself.
On an encouraging note, I experienced a lot of the same sleeping issues you describe when I was younger. It lasted through my 20's. I gave into it and started DJing in New York, then working in various clubs. Eventually I trained myself to sleep at night but it was only when I was old enough to realize it was something I had to program myself to do. I don't think my parents could ever have made it happen.
Think of all the wonky things we all do as children, or as teens even. I have a 16 year old who is in a terrifying phase in her life. I'm so scared for her. But the end thing is that I was just like that, purple hair, Skinny Puppy t-shirts, tats, nose rings, ran away to NYC...Now I'm a design manager, all responsible and grown up. -As grown up as I'll ever be. I own a house, have 2 kids and 1 more on the way, pay my bills, I EVEN HAVE AN ::GASP:: INVESTMENT ACCOUNT. Holy crap.
The point is, he can struggle through these challenges, but he'll adapt. I don't know all the fine points, but I hope you know that he'll figure out a way to live well no matter what is going on now.
Hell, I bet inside there he's a freakin' genius and will be some kind of mad scientist who cures the world's worst illnesses. :)
All the best,
Alana
http://www.waterspiper.com
oh my. those giggles could solve world problems, they're so perfect.
Wow, you always get so many comments, but if you want (yet) another point of view, here's mine...
Iris (who is two and a bit)has never been a great sleeper and she's just upgraded to a bed,before that if she woke in the night, we'd just bring her into our bed (I know, I know) because we were tired, it was cold, etc etc. Now, we have gated her room and n the last two or three nights (this has been going on for months) she has managed to stay asleep all night until 5 or 6am. When she stays at my mum's, she sleeps all night and they very often have to wake her in the morning. Gaaah!
Oh, and I totally thought her room was haunted, she'd wake up shouting and screaming so violently sometimes that I thought it couldn't be anything else.
Hope you get a sleeper this time round...
not that is will be any consolation to you NOW, but there are plenty of jobs and occupations that will suit LB perfectly as he gets older. We truly live in a 24/7 world, and I can only imagine it will get even more so....I must say, I am glad it is such a sweet little giggle, rather than the blood curdling screams my niece used to make in her sleep...oy.....I am sure you are aware of this, but you ARE an amazing, unique man.
I think that you can also attribute some of this awakeness ( is that a word?) to wanting mommy time. Kids are VERY attuned to whats going on. When I was expecting my second, and third, I experienced the same thing. Children awake all hours, wanting to spend time with me in bed, as if I was trading them for another, which, of course, was not the case. Allow him to be loved A LOT by mommy, so he'll know that another person in the household just means more love in the household.
Loved the giggle, although if I heard it at night, I'd probably jump..
LB is probably the cutest little boy I've ever seen. I went and read the post you linked in this one, & the way you handled the fact that you & Cole's future plans might be a little different was amazing to me. Most people I know would have freaked out and been totally depressed about it, and the fact you are so positive and caring about the situation really touched me.
Good luck with his sleeping problems!
That's so lovely that it's working for you!
My younger brother use to sleep-walk and pee on things - like the fridge and vaccum. LB sounds like he is going to be much easier to handle than that. And he can be a rockstar when he grows up - it is in his DNA :)
(delurking)LB sounds almost exactly like my little sister who is about 14 years younger than I am and was adopted by my parents a few weeks ago. She has a diagnosis, though. But the not sleeping, the waking up and giggling, the playing by herself, the enjoying of brushing... it's all her. My parents always tell me what a joy she is. What a happy happy child. My mom gets next to no sleep because my sister is wide awake around 3 a.m. every night, but she says it's hard to be too upset when my sister is just that happy to see her. She's an amazing kid and she defies expectations every single day. I'm glad you guys are able to focus on the joys, too.
scratch that, my sister was adopted a few YEARS ago, not a few weeks ago!
YOU GUYS ARE NUTS!!!! That giggle is the scariest thing I have every heard! I would piss my pants if I heard that in the middle of the night. In fact i am kind of scared just thinking about hearing it in the middle of the night. Do you remember poltergeist? That kid with the TV? Yeah... she seemed cute to start with too!
As you can see, I'm catching up on my blopping. I've been reading through the 9 or so posts that I missed while I was away from blogger. I think you and Cole are doing such an awesome job with LB. I'm so pleased to hear that he's talking more and more, that must really just make you burst with joy!
I noticed the little bit about the 'skin brushing' and admittedly I'd never heard of this, so I looked it up. I'm all about getting all up in that! Maybe I'll stop spending oodles and oodles on dry skin remedies that way.
bright blessings!
LB has the CUTEST laugh. too bad it's so early when it sounds!
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