May 29, 2009

Sitting Around the Table Talking

Last night for whatever reason right after dinner, (nothing special, just pasta & red sauce, fruit salad, and some leftover chicken) we all sat around the table and actually "talked" with LB. The Littlest Buddy is usually in a big hurry to finish up dinner and get started on his bath time, so he usually starts asking to get "down, down, down" as soon as he is "done, done, done." But last night he stayed in his seat and was interested in the questions we were asking him. we were hitting him up with stuff like, what's your favorite show, and would you rather have ice cream or watch Wubbzy? Cole was asking him about the new baby, and what he thought about it, did it make him happy or sad? Did he know where it was? All the cute miracle of life stuff. I just want to know what he thinks about so bad, and I know Cole has been waiting and wondering so much longer then I have. What does he have opinions about? What doesn't he understand? We can't wait to finally get to hear all his questions. So last night was a very small glimpse into what it will be like to finally get to sit around and talk with LB. He has also introduced this little bit into his "super charming" arsenal... where he rests his hands on his cheeks and stares at you in this devastatingly endearing way, and it gets him just about anything in the universe that he wants.

LB has not been able to maneuver his muscles, and form his lips, and get his tongue to do what it needs to do to make sounds come together. To hear him "talk" you might not get what he is trying to say, but he is having so many breakthroughs since we increased his sign language vocabulary, and he started to use his "talking box." The benefits of him being able to communicate more lowers his frustration levels, which allows him to focus and absorb his speech therapy in a much more productive way. The kid just wants to tell us what's on his mind, and the longer he goes without be able to, the angrier he will get. So for us it has become a race to curb his frustrations. He has been showing us so many new sounds and really exercising his voice. Very much like the initial babbling and shouting an infant will do. He likes to hear his own voice and he is being so vocal, our silent house is turning loud from the constant jibber jabber and chaos that you would expect to hear from a 4yr old coming down off a sugar explosion. It is exciting.

So yeah. Last night was terrific and he was pouring it all on. This is a mix of photos to show off all the ways he talks to us. From his little charms, to signs, to new sounds.

Doesn't it look like he is just so interested in what Cole is saying? Really? Tell me more about that.



Dude! Why are you taking my freakin picture?



Introducing the letter "U" one of his new vowels



Signing for "ice cream"



This is getting boring



I'm pretty sure I'm done with your questions.




He is making so many new sounds, and attempts at new words. He is communicating on a higher level than ever before. It is a mix of signs, grunts, pointing, and using the words he can say, and now in the mix is his talking box. Which when I first heard about this contraption, I was convinced it was going to be some tiny black box that he carried, and some sterile robot voice would say shit like: "Do you want to play with me?" It is a simple little machine. It has multiple channels to record different sets of possible wants and wishes, and along with each scenario we have the standard reply of "I don't understand" just in case he needs to figure out wtf we want him to do. Cole took charge of the box and sat down, and made tons of these scenarios for him, knowing that he wants, (and HAS been wanting) to ask and communicate so many things to us, he just hasn't been able to before now. So she sat and scribbled away, sheet after sheet of phrases, and sayings, and requests for LB to arm himself with. He knows how to use the talk box very well, but still blurs the line of it as a toy, and not a tool. He loves repetitive electronic gear so this is like major temptation for him to conquer. The box will be programmed by a 3rd grade boy at his school, so it is a kids voice that we hear, and we slide in the appropriate sheets for separate scenarios like: morning, and dinner time, and bath-time, swimming and play, and just about anything and everything that Cole could think of. It was awesome to see her tackle this project, knowing that she would finally get to know LB on deeper levels.

The Littlest Buddy will be five in August. He has been quiet for so long and she is finally seeing an end to his silence in the future. Makes this old man happy.

This is the talking box



This is the back of the box, super simple control panel




When he gets older I am sure this box will be programmed with hip-hop beats and samples for him to rap over. His mobile studio. Until then, he can use it to talk to us and get a little closer to feeling that calm from the reassurance of asking and receiving answers about the world. Something that we take for granted; because when we don't know what the fuck is up... we just ask? Well, most of us do. There are some stubborn mules out there that just walk around grouchy.

Keep talking LB. You will get there soon.

All the Love in the Universe ~ Me

37 comments:

Francine May 29, 2009 10:20 AM  

Nice to see and hear more of LB on here. He seems to be doing great!

I was worried after you said the Thursday photoshoots might have to stop. I thought he would make off with your camera and bury it in the yard if you came too close with it.

Kat May 29, 2009 10:21 AM  

I am glad to hear that you guys are finding ways to better communicate with LB. I am sure it will lead to great things in the future for all of you.

blondie-lox May 29, 2009 10:28 AM  

sign language is wonderful. for you to learn, for LB to speak his mind, for the baby to grow up using. my littlest was SO young when she started signing. very useful, indeed.

Marie-Ève May 29, 2009 10:39 AM  

Wonderful post. Way to go LB!

Lauren From Texas May 29, 2009 10:54 AM  

He is so cute. My husband is a speech therapist and so that is awesome to hear about the progress he is making. Keep it up LB!!

TwoBusy May 29, 2009 11:15 AM  

I'm sure I'm not the first person to ask this, but have you read "Schuyler's Monster?" LB's talking box sent that leaping to mind.

The Panic Room May 29, 2009 11:17 AM  

@ Two Busy- I have not. And yes it has been suggested. I just can't seem to get thru all of these birthing books in the house and the mountain of case studies about SMS. I am sure I will find myself reading it one day, I have heard it is incredible.

Melie May 29, 2009 11:35 AM  

First time posting a comment..LOVE your blog, and look forward to reading every day. You have a lovely family, and seem like very cool people. I'm quite a spelling fanatic, and can't help but notice that you typically use the word "then" in the place of "than". Sorry for being so picky. Otherwise, great writing! P.S. I'm from Canada, and am so jealous of your hot, sunny weather and afternoon storms. ;) I'll take it! But, the grass is always greener... All the best!

kristy - where's my damn answer May 29, 2009 11:56 AM  

Awesome post :-D.

I think maybe I should invest in talking boxes to help a few folks I know communicate better if it's going to help them stop being grouchy asses.

:: researching now ::

Seriously though ... awesome!!

Belle May 29, 2009 12:00 PM  

You are the new love of my life. It's just a shame that your wife is so godamn gorgeous! As much as I love you, I'm afraid I love LB even more. He is the cutest little thing I have ever seen. I have a feeling he is going to be a great communicator.

The Panic Room May 29, 2009 12:00 PM  

@ Melie- That must be why I haven't locked down that elusive book deal yet. thanks for reminding me I'm a fucking idiot :)

Belle May 29, 2009 12:01 PM  

Oh - and you are an awesome photographer!

Zoe May 29, 2009 12:01 PM  

Thanks for the latest LB update. He has such a great array of expressions - sometimes he looks like a wise old man, and in others he expresses pure innocence. Post-dinner conversations are always the best - wishing you many more with LB and the soon-to-arrive little one.

Amy@Bitchin'WivesClub May 29, 2009 12:20 PM  

That is an amazing device! I love it when technology can step into a void and help foster what is so distinctly human behavior. :) I hope that LB takes to it and between the signing and the speech therapy work he will be able to let the world know his every desire and thought.

Lee of MWOB May 29, 2009 12:34 PM  

I'm all weepy reading this post today and I'm not even PMSing....wow. Those pics of LB are just so......beautiful. That lighting. Really now. How do you get every photo to have such a mood attached? It blows my mind.

And the talking box?? Hooray! That thing looks awesome and yes, fun to play with. This is one of the first posts where Cole as a mama just really jumped out at me. Her programming that box to communicate with her son. So devoted. So there. I can totally relate to that feeling. Brings all kinds of tears to my eyes.

You guys really do rule and LB is on his way....with a great team behind him... :-)

Have a great weekend.

Lee

michelle May 29, 2009 12:56 PM  

A highly non-verbal autistic student in my school uses a talking box just like LB's. It s seriously AWESOME! I a so glad you got a kid's voice though, because it is disturbing when this kid "talks" and it is a grown-up man voice. With an accent.

Employee No. 3699 May 29, 2009 1:37 PM  

First time here and let me tell you I love your blog. You are an amazing photographer and your words just flow. I'll be back peaking in on you.

logan May 29, 2009 1:42 PM  

This is so inspiring to hear about. Sounds like LB is super lucky to have such a supportive family!

Robin May 29, 2009 1:56 PM  

that is some really cool technology and a freakin cute little boy!

Bety Beans May 29, 2009 2:01 PM  

I really enjoyed reading this post.

Bety Beans May 29, 2009 2:01 PM  

i really enjoyed reading this post.

Erin May 29, 2009 2:10 PM  

I am working with an 8 yr old right now who uses a similar device but with way fewer pictures. He has been struggling to learn to use his box in a concrete manner to answer simple questions. The fact that LB is using such a complex device in a functional way is a really great sign!

Amanda Gibson May 29, 2009 2:10 PM  

Very cool.

I've never heard of a "talking box" - and although I don't have a child or family member with a speech problem I am so very thankful to live in a day and age where our kids can have their very own talking box. Technology really is a wonderful thing, isn't it?

BTW - LB is SUCH a cutie. I'm a sucker for kids in glasses. And those cheeks! Don't get me started on the cheeks.

What a lucky man you are....

Nory May 29, 2009 3:29 PM  

This is not my first time reading your blog but the first time posting a comment. Your blog is so enjoyable! I so look forward to it. Keep doing what you're doing- its working!! Best to you and your family...

Sarah @ BecomingSarah.com May 29, 2009 6:06 PM  

I love this series of photographs =) It's wonderful to see that he's communicating more and more. Go LB!

Geordy and Pete May 29, 2009 7:15 PM  

incredible stuff.
i am a primary school teacher and have worked with this system with many children. it is fantastic and gives them the confidence to grow.
well done the two of you and may you take many more photos of the amazing progress just for him to look back on and be so proud.
x

Joanie M May 29, 2009 7:26 PM  

LB seems to be making progress by leaps and bounds all of a sudden! That is really wonderful!

Cary Walker May 29, 2009 8:25 PM  

i was really moved by this post, and the love you have for your little boy. very special. thanks for sharing this.

Keeper of the Skies Wife May 30, 2009 9:17 AM  

These talkers are wonderful!! I have a few students who use them. As they are older sometime they have put cuss words in them. :)

Love the photos

adrienne May 30, 2009 9:52 AM  

it's simply amazing what we have at our disposal to assist in tackling the hurdles of parenthood.

and that a young person in the community will help little buddy to find his voice. amazing.

lb, his younger sibling, and the talking box should fit into that cargo bike quite neatly. so, good luck to you as well...

someone has to win it, right?

maybe we will each get one...

Jayfleur May 30, 2009 11:14 AM  

Those photos of LB sat at the table are fab - not too 'cutesey' and showing LB as a little person in his own right.
My 2nd child was very slow to talk and although he has no speech problems now, it taught me that all children are different and move at different rates. Some kids like LB have to come at things from a slightly different angle - but isn't it fascinating to wonder where they'll all end up?!

Marinka May 30, 2009 2:22 PM  

That is so, so wonderful. My daughter had speech issues that we worked hard on, and once, when she was five, she told me "there was so much that I could not tell you when I was little". That bridging of her silent world and the voiced one broke my heart.

Alexandra May 30, 2009 2:55 PM  

The way you talk about LB, the love you have for him, and the strides he seems to be making are so inspirational. Seems like your house is on the cusp of lots of miracles these days :-)

Tia May 30, 2009 4:26 PM  

I love how committed you and Cole are to helping LB in anyway you can! I am an Art teacher (on hold) and have a LD minor and have always had a soft spot in my heart for those with special needs. I think having a brother would is Mildly Retarded has been a part of that. Keep working with him! With all the love and attention you 2 give him he is sure to flourish!

ALSO! I was wondering if you and your wife would be interested in doing a little PR (product review) for us. Seeing as you are about to have a beautiful baby in the home I would love to offer you a free sling in return for a review on your site! We are just working on our summer line so the website is yet to be update with the latest designs, but you can take a peek at www.keikikuddlerz.com if you are interested and want to wait until baby gets here so you can pick out a sling that goes with baby's gender that would be fine! Let me know!

kid collective May 30, 2009 9:58 PM  

i recently found your blog via several mom friends. your photography pulls people in, the stories capture the rest. nice work.

GIRL'S GONE CHILD May 31, 2009 9:01 PM  

Belated but this post reminded me of something I wrote about Archer before he truly spoke:

http://www.girlsgonechild.net/2007/12/way-it-used-to-be-and-now-part-ii.html

Love the photos as always. Love to all. xo

mommymae June 1, 2009 10:01 PM  

i do so love the photos of lb at the table. your captions are perfect. i used to teach middle school special ed. & while my students were talking by then, they couldn't read or write & the level of frustration was beyond compare. i hope lb catches a break with the talk box & can communicate to you guys better & curb his frustrations.

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